Topan A, Demirel S, Alkan I, Ayyildiz TK,Doğru S (2019) Parenting an Autistic Child: A Qualitative Study. Int Arch Nurs Health Care 5:133.


© 2019 Topan A et, al. This is an open-access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.

ORIGINAL RESEARCH | OPEN ACCESS DOI: 10.23937/2469-5823/1510133

Parenting an Autistic Child: A Qualitative Study

Aysel Topan, PhD, MSc, RN1*, Serap Demirel, MSc, RN2, Işin Alkan, MSc, RN1, Tülay Kuzlu Ayyildiz, PhD, MSc, RN1 and Sevda Doğru, MSc, RN2

1Department of Nursing, Faculty of Health Sciences, Zonguldak Bülent Ecevit University, Zonguldak, Turkey

2Department of Nursing, Institute of Health Sciences, Zonguldak Bülent Ecevit University, Zonguldak, Turkey


To determine feelings and thoughts of parents with autistic children. This qualitative study consisted of 20 parents. 'Personal Information Form’ and semi-constituted 'Guide Interview Form' with qualitative face-to-face technique were used. Thematic analysis method was used for analyses. The mean age of children was 10.80 ± 4.30 (3-16 year-olds). Expressions of parents were grouped under the following main themes: Feelings of parents when they learnt about the disease, how this condition affected the life quality of parents, problems of parents about childcare, and concerns of parents regarding the future of their children. Parents expressed their feelings upon learning about the disease: 'I felt unhappy, shocked, extremely upset and I could not accept this situation'. Their social and family life was negatively affected, and they were disturbed due to gaze of others. Needs of families and children should be met, different perspectives should be developed with a common philosophy.