Table 1: Search string in PubMed1.

Mowat -Wilson syndrome OR Mowat Wilson syndrome OR Mowat Wilson OR Mowat-Wilson

AND

(therapeutics[MeSH Terms]) OR (management) OR (activity, daily living[MeSH Terms]) OR (activity, educational[MeSH Terms]) OR (disease management*[MeSH Terms]) OR (Education[MeSH Subheading]) OR (training) OR (treatment) OR (intervention) OR (therap*)

1All search terms that were not MeSH terms were searhed for in “All Fields”.