Table 3: Awareness levels of respondents on RD & OD.

Unawareness Levels among Respondents on RD and OD

# of Respondents

Response %

Never heard of Rare Diseases

142

23.7

Institution NOT offering awareness on RD

180

30.0

Never heard of Orphan Drugs

255

42.6

Unaware of Commercial availability of OD

395

66.0

Unaware of the Definition of RDs

225

37.6

Unaware of # of RDs

290

48.4

Unaware of the # of RD Patients population in India

343

57.2

Unaware of the cause of RD

122

22.3

A common cause of RD is Genetic

249

41.6

RD occurs by birth

84

14.0

RD can occur any age

291

48.5

Unaware of the onset age of RD

116

19.3

1%-2% population will get affected by RD

217

36.3

Unaware of the % of affected RD population

181

30.2

Poor Countries Suffer

105

17.6

Rich Countries Suffer

48

8.0

No RD discrimination in Rich & Poor Countries

446

74.4

RD affects all countries

406

67.7

The time taken to diagnose RD

Seven days to 5 Years