Table 1: Demographics and clinical characteristics of respondents by caregiver assistance.

Reported caregiver assistance
Never

(n = 406)
Rarely

(n = 169)
Sometimes

(n = 210)
Often

(n = 119)
Ever*

(n = 498)
Mean (SD) age, y 56.0 (10.7) 54.7 (11.5) 53.7 (10.7) 55.1 (11.0) 54.4 (11.0)

Sex, n (%)

Female

Male

 

278 (68.5)

128 (31.5)

 

129 (76.3)

40 (23.7)

 

163 (77.6)

47 (22.4)

 

92 (77.3)

27 (22.7)

 

384 (77.1)

114 (22.9)

Mean (SD) disease duration, y 5.9 (6.2) 5.2 (6.0) 6.0 (7.3) 4.8 (5.6) 5.4 (6.5)
≥ 1 comorbid condition, n (%) 156 (38.4) 78 (46.2) 107 (51.0) 76 (63.9) 261 (52.4)

Comorbid conditions ever diagnosed, n (%)

Solid tumor

Deep vein thrombosis

Diabetes

Transient ischemic attack

Myocardial infarction

Ischemic stroke

Pulmonary embolism

Liver disease

Emphysema/COPD

Connective tissue disorders

Moderate to severe kidney disease

Peptic ulcer disease

Congestive heart failure

Other blood cancer

Other

None of the above

 

31 (7.6)

28 (6.9)

27 (6.7)

19 (4.7)

15 (3.7)

13 (3.2)

13 (3.2)

13 (3.2)

11 (2.7)

10 (2.5)

10 (2.5)

8 (2.0)

7 (1.7)

6 (1.5)

0 (0.0)

250 (61.6)

 

11 (6.5)

15 (8.9)

15 (8.9)

15 (8.9)

6 (3.6)

4 (2.4)

6 (3.6)

2 (1.2)

13 (7.7)

15 (8.9)

6 (3.6)

4 (2.4)

3 (1.8)

6 (3.6)

2 (1.2)

91 (53.8)

 

13 (6.2)

20 (9.5)

23 (11.0)

20 (9.5)

14 (6.7)

8 (3.8)

8 (3.8)

8 (3.8)

10 (4.8)

15 (7.1)

10 (4.8)

6 (2.9)

6 (2.9)

6 (2.9)

5 (2.4)

103 (49.0)

 

15 (12.6)

10 (8.4)

23 (19.3)

20 (16.8)

7 (5.9)

9 (7.6)

10 (8.4)

11 (9.2)

12 (10.1)

6 (5.0)

9 (7.6)

5 (4.2)

8 (6.7)

10 (8.4)

2 (1.7)

43 (36.1)

 

39 (7.8)

45 (9.0)

61 (12.2)

55 (11.0)

27 (5.4)

21 (4.2)

24 (4.8)

21 (4.2)

35 (7.0)

36 (7.2)

25 (5.0)

15 (3.0)

17 (3.4)

22 (4.4)

9 (1.8)

237 (47.6)

COPD: Chronic Obstructive Pulmonary Disease; *Includes all respondents who reported receiving help from a caregiver "rarely", "sometimes",

or "often"; Self-reported and based on a prepopulated list of select conditions. Respondents could select > 1 condition.