Table 1: Research studies assessing awareness of GINA.

Author & Date	Population	Instrument/Method	Study Purpose	Findings
Allain, Friedman & Senter [12]	1,699 members of a Hereditary Breast and Ovarian Cancer Syndrome advocacy group	Anonymous online questionnaire, 34 items	Examine awareness and attitudes about GINA	45.7% were aware of GINA before taking the survey p ≤ 0.0001
Fusina [9]	56 physicians affiliated with Mount Sinai School of Medicine	Anonymous online survey, 19 closed-ended questions and one open- ended question	Examine awareness of GINA by physicians	42.9% were aware of GINA p = 0.0004
Garrison [10]	1,076 members of FORCE, (Facing Our Risk of Cancer Empowered) advocacy group and clients of Ohio State’s Clinical Cancer Genetics Program	Anonymous online survey, 33 multiple- choice questions	Evaluate consumer knowledge and attitudes of GINA	52.1 % of respondents were aware of GINA before the study p < 0.02
Laedtke, O’Neill, Rubinstein & Vogel [13]	401 members of American Academy of Family Physicians	Mailed/online survey. Number of items on survey not reported	Evaluate physician’s awareness/knowledge of GINA	45.5% aware of GINA.10.3% self- reported knowledge of GINA, p < 0.001
Huang, Huston, & Perri [14]	295 general population panel of U.S. citizens, ages 18-64	17-item survey, included 2 questions to measure awareness/knowledge of GINA	Evaluate consumer awareness of genetic discrimination and GINA	8.8% were aware of GINA, 3.4% knew GINA prohibits improper use of genetic information, p value not reported
Pamarti [11]	257 genetic counselors from National Society of Genetic Counselors	32- item online survey, adapted from previous surveys	Assess knowledge about the scope of GINA and genetic discrimination in clients	56% aware of general provisions of GINA, 99.3% knew about GINA’s health insurance protections p < 0.05
Qurehi, Warda, Rahaghi, Ferrer, Ramirez, Rahaghi [15]	41 physicians at Cleveland Clinic/Florida	Questionnaire - number of items and type not reported	Evaluate personal practice of ordering lab tests and awareness of GINA	39% aware of protections offered by GINA. 99% wanted to find out more about GINA, p value not reported